Spouses and adult children of people with Alzheimer’s and other dementias often have to brace themselves for a time when their loved one no longer recognizes them.
Are you worried that your loved one with dementia has forgotten who you are? Maybe she doesn't remember your name, you've become just a familiar face to her or she doesn't even seem to recognize you anymore.
It can be difficult to watch the cognitive decline in dementia. And when that decline seems to directly affect your relationship with your loved one in this way, it may feel even worse.
It's not uncommon in the middle and later stages of Alzheimer's disease for people to lose the ability to remember and recognize others. Sometimes, this loss is limited to the inability to recall the name of the person or the exact relationship. A wife might accidentally call her son by her husband's name, or think that a regular caregiver is her daughter. A father might point to the picture of his daughter with affection but not be able to tell you what her name is.
Other times, these changes are accompanied with anxiety, agitation, paranoia, delusions, and combativeness. Some people have experienced their loved one yelling at them (the "stranger") to leave their house, or screaming and hitting them when they've tried to give them a hug because they don't recognize them anymore.
Why Does This Happen?
There are several possibilities for why your loved one doesn't recognize you anymore. Here are a few:
Because Alzheimer's damages the brain, memory declines. Depending on where the damage is in the brain, facial recognition and the ability to recall names, events and fundamental information can become impaired. Changes in the brain are the most common reason why your loved one doesn't seem to recognize you.
Paranoia and Delusions:
Sometimes, a psychological change occurs in dementia and paranoia or delusions develop. These irrational thoughts and feelings can cause the person to fear you and believe untrue things about you, even if they do recognize you.
If this change in the ability to recognize you is sudden, be sure to contact her physician since it's possible she may be experiencing an infection or medication interaction that is causing delirium.
Occasionally, a person with dementia experiences a significant decline in vision and it goes unnoticed. Perhaps you haven't taken your loved one to an eye doctor for a few years because it's a difficult process. It's possible that she can't see you well enough to recognize you.
Tips on Coping
Acknowledge the Loss:
As with other grieving processes, it's okay, and often necessary, to let yourself grieve this decline in your loved one. You don't have to be stoic, even if you've read up on what to expect and you know the change is coming.
If you sense he/she doesn't recall your name or who you are, simply remind him once by saying, "We haven't seen each other in a while. I'm your nephew Sam."
Give Credit where Credit Is Due:
Remind yourself that this is due to the disease process and not a choice by your loved one. It's the Alzheimer's disease, vascular dementia, Lewy body dementia or other type of dementia that should take the credit/responsibility for the loss of ability in your loved one. When he remembers your sister's name and not yours, try not to take it personally, even it it hurts your feelings. Blame the disease.
When your loved one doesn't remember you, your goal is to decrease his anxiety or worries, not increase them by pointing out that you've been married to him for 50 years and asking why he doesn't love you anymore. Instead, you can try to change the subject or sing a favorite song with him.
If your wife continually refers to you as her father, ask her to tell you about her dad, what she misses about him, what he looked like, what he did as a job, and what she loved about him. Give her the opportunity to share her memories of him, rather than try to force the issue and make her identify and remember you.
Photos and Videos:
Show your loved one older pictures of family and friends to reminisce together. It's likely that she will remember more from long ago and this exercise may sometimes trigger her to recall more recent items as well.
Seek Medical Help:
If your loved one's inability to recognize or remember others is making her (NOT you) feel anxious and frequently distressed, if her paranoia is affecting her eating or sleeping, or if she is fearful of you to the point of becoming dangerous to herself or others around her, call her physician. There may be appropriate medications or other treatments that can address the cause of these behaviors and decrease her distress. While a physician won't be able to reverse her dementia, medical treatment can improve the quality of life for both of you.
A Word from Verywell Health
Some research has found that the positive feelings after a visit with someone living with dementia remain long past their memory of that particular visit. Remember that if dementia causes your loved one to not be able to recognize you, spending time with him/her can still be beneficial and uplifting to both of you.
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